Friday, April 25, 2008

What is Cystic Fibrosis (CF) ????

Cystic Fibrosis (CF) is something that two of my dear friends and their children and grandchildren are dealing with on a day to day basis.

CF is a disease. CF is a disease that attacks the lungs of an innocent child, and makes it difficult and sometimes impossible to breathe. CF is a genetic disease that effects over 30,000 people in the US. In the 1950's these children rarely lived to attend elementary school. But with the help of organizations like the Cystic Fibrosis Foundation and modern medicine, the average estimated lifespan is now 37 years. And is increasing every year! More information about the disease can be found HERE.

CF is something that Megan, at age 8, faces daily and requires her to take 40 pills a day and do treatments twice daily. CF interferes with her ability to ski and mountain bike, yet her beautiful smile always shines through!

CF is something that Owen was diagnosed with at 6 months.....and requires his parents to do treatments for hours each day, to make sure he can breathe easily the next day. Owen's grandma, Barb, introduced me to CF last year. A disease I wish I had never met!

But together, we can all make a difference! There are more drug therapies being discovered daily that help CF patients! And

For more information about Cystic Fibrosis - Watch this PSA!
For more information about the Great Strides Walk - Watch this Video!

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